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My Achalasia Story

Monday, July 25, 2011 @ 10:07 AM
posted by Karen Jean Matsko Hood

Dear Fellow Achalasia Patients,

I write this blog today during a beautiful, sunny Spokane, Washington, Sunday.  As I write I wonder how all of my fellow achalasia patients out there are doing.

Achalasia is a rare disease. I know from experience that it helps to talk to others who have the same affliction. It is hard to believe that October 4, 2011, will be the fourth anniversary of my repair surgery. Life is far better than it was for the seven years before the surgery.  Prior to that time, I was not aware of the term “achalasia.” Therefore, what I would like to tell all of you is that there is hope.  Do not struggle with your current situation, as  professional help is available.

A CXR showing achalasia (arrows point to the outline of the massively dilated esophagus)

In my case I was officially diagnosed with achalasia in August 2007. I had no idea what achalasia was and was not particularly worried with the term.  Being as curious as I am, I immediately went home after my esophageal dilation procedure and waited for the anesthesia to fully leave my body so I could hop on the Internet and read exactly what achalasia was all about. Holy Molie! I became scared almost to death! There is truly frightening stuff out there on the Web. In fact, after reading the stuff, I thought I would be dying soon, and this was no happy thought!

I have a lot of people who depend on me and a lot of responsibilities in my life, so I began trying to take care of things in my now suddenly expected short life.  I called my doctor, and he said I most certainly was not near death, but I thought he was just trying to be optimistic and nice. I wasn’t having any of it!

To my husband’s dismay, I planned my own funeral arrangements to save him the trouble. Yep, I selected a simple coffin and a nice cemetery with a view. It seems that relaxation for me only takes place when I have a view. Weird as it may seem, I was at peace making time payments on my selected plot and even bought one for my husband next to me. Of course, he would not be using it for a long time after me, since he would have a long, healthy life, I figured. The thought of him marrying too soon, without a respectable time mourning my passing, was disturbing, so I pushed those thoughts right out of my mind. I was having enough trouble as it was.

Back to my achalasia. Now it was time to complete more research, so back to my computer I went. I ordered every natural remedy out there, although there were only a few at the time. Still hopeful in spite of my funeral planning, I faithfully followed directions on all of them. My physician told me there was no cure but that most achalasia patients live with the disease and do not die from it. Yipes! That was not reassuring.

"Bird's beak" appearance, typical in achalasia

My weight dropped 69 pounds suddenly. It scared my kids and my husband. Previously I was a tubby, but this was no way to lose weight. I could not get or keep much food down. My stomach sphincter was so tight that it would allow only a trickle of fluid through to my stomach.  My regurgitation was out of control, and since my diagnosis was vigorous achalasia, it brought the worst type of pain. Sometimes my esophageal pain would last an hour. My family timed it, and it seemed that I could not bear the duration of the pain. Often I would run out of the house and walk around the house, using my animal instinct to flee. Nothing worked and for the first time in my life I could understand people wanting to die because of pain.

Stay tuned for the second installment of my story. There is hope at the end of the tunnel.

Karen Jean Matsko Hood

Achalasia Support Group
James and Karen Hood Foundation
507 North Sullivan Road, Suite LL-6
Spokane Valley, WA 99037-8576 USA
E-mail: karenscustomerservice@gmail.com
Phone: (509) 924-3550 | Fax: (509) 922-9949

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Foster Care Drifting Crisis

Wednesday, June 15, 2011 @ 08:06 PM
posted by Becca

Perhaps the most memorable orphanage in pop culture influences society of today is from the Broadway musical and multiple movie remakes of Annie.  We, the viewers, are enraptured by Mrs. Hannigan, Punjab, Daddy Warbucks, the singing and dancing orphans, and of course, Annie.  We know there is a happy ending, so watching the sorrows and suffering of the children with a hard knock life is not unbearable.  Imagine, however, if the end of their stories were not set.  In reality, the “Annies” of the world do not often find their “Daddy Warbucks.”  Further still, their hard knock lives are not just the lyrics to a song.  It is, in some cases, an actuality. It is because of these realities that I, adoptive and foster mother of 16 inter-racial and special needs children and advocate for abused and neglected children, will take an inside look at the crisis in the foster care system regarding out-of-home child placement and the options available to the well being of these orphaned or abandoned children.

Interestingly, it was in 1881 that the first orphanage was founded. The Diskin Orphan’s Home was created due to the large amount of Russian orphans that, at that time, had recently immigrated to Jerusalem[1].  This, essentially, was the reason for the erections of many orphanages.  Due to the Jewish immigration of World War I, and the continuous death of those on the battlefield, the number of orphans grew.  And, due to the lack of scientific advancement during the 1920’s, cholera and typhus also contributed to the large numbers of orphaned children.

As a result of the orphaned growth, child welfare projects developed during that time; and due to the Palestine Orphan Committee, 12 orphanages, caseworkers and diagnoses for social disabilities, family-oriented dependant child care, developed model for the first children’s village, and the beginning of healthcare, education, and vocational training in orphanages grew.  The history of child welfare and the caseworkers needed for these institutions to function is important knowledge as well as the effects, both negative and positive, of these early child welfare developments and the effects the Palestine Orphans Committee had on the modern orphanage and childcare.

The ideas of child welfare and the Palestine Orphans Committee and some of the earliest and best-known orphanages sprang from immigration.  Of the institutions, Hutton Settlement, an orphanage on the National Register for Historical Preservation in the city of Spokane, Washington State, is of the Jacobethan revival style design, with a “Whitehouse and Price” feel to the four large house, 319 acre complex.  Here, Levi Hutton, founder of the settlement, is introduced.  His wife and children are discussed, as well as the influence the Hutton Settlement had on the Spokane, and on the Shriners.  The Complex showcased the region’s first underground power cables and telephone lines.  As restated on the Shriners website, “if one man could build and do for children what Mr. Hutton has done, what could 500,000 Shriners do?” was the figurative conception of the Shriners Hospital for Crippled Children.

Noting a fast history of orphanages country wide is not my only intent; rather, laying out a theoretical and physical blueprint of various orphanages, the political histories of these orphanages, the educational abilities along with the statistics accrued by the facilities, and the moral obligation we have to the welfare of children, are the issues needing to be focused on today.  Reasonable options will to stop or at least effectively reduce the amount of children forgotten in the system and left to age out into an adult world they are hopefully prepared for.  Explanations of the various choices society will help support and reunite families both for the families and for the budget, as it costs to keep children in out-of-home services.

With all background information laid out, what then can we do to create a more stable environment for the more than 143 million orphaned children?  There are options available to get the over half a million children in the dead end programs out.  The fact remains that over 39% of white orphanage alum have 39% higher rate of college graduation than any other white American.  But, orphanages are expensive, due to the stigma that causes workers to have the mindset that other forms of childcare are more efficient and higher quality than other facilities.

As a foster and adoptive mother as well as a court advocate for the rights of neglected and abused children, I have first hand knowledge of the living environments in both foster homes and modern orphanages.  Some argue that orphanages send out more fully developed and prepared young adults.  Others say the one on one-ness of foster care is more effective for a healthy child.   I wish for all to have the opportunity to hear all sides of the same story, bringing my own personal thoughts into the equation.


[1] “Rabbi Yehoshua Leib Diskin: The ‘Rav’ of Brisk.” http://www.hevratpinto.org/tzadikim_eng/142_rabbi_yehoshua_leib_diskin.html

 

 

About the Author

Karen Jean Matsko Hood is a Guardian ad Litem and Court Appointed Special Advocate volunteer (CASA) for abused and neglected children in the juvenile court system, a women’s and children’s rights advocate, and foster children advocate. She runs For the Love of Children International, is partner with her husband in the James and Karen Hood Foundation, promotes literacy for adults and children, volunteers for the Social Justice Committee, has a pastoral ministry, is a member of her church choir, is a 4-H leader and volunteer, works in lay ministries, and is a Girl Scout and Campfire leader.

For more information, you can contact the author at her office below:

 

Karen Jean Matsko Hood

507 N. Sullivan Rd. Suite LL-7

Spokane Valley, WA 99037 USA

Phone: (509) 924-3550 Fax: (509) 922-9949

karensblog.net

karenjeanmatskohood.com

 

 

Foster Care Crisis in America’s Recession

Tuesday, June 14, 2011 @ 06:06 PM
posted by Becca

The foster care crisis in America is three-fold.  There are not enough quality families in America to support the children who need them.  Further, children with emotional and behavioral issues in the system are on the rise, creating a need for additional families in this already deteriorating situation.  To make matters worse, the recession in our country is directly affecting both biological and foster families as well as provider reimbursements, frontline caseworkers and mental health.

 

According to Faith Bridge Foster Care, there are not enough families for the children who need them.  Researchers for the Children’s Hospital of Philadelphia (CHOP) agree.  Due to the economy today, many cases in the need for foster care are due to the homelessness, poverty and unemployment growing rapidly.  Experts believe the need for foster care will rise as the economy worsens.  “Child welfare workers,” The Foster Club says, “are already seeing a rise in reported child abuse and neglect cases, as much as twenty percent in some areas.”  Unfortunately some foster families are simply unprepared for the upheaval of their family.  It is, according to the Faith Bridge Foster Care Agency, because of frequent agency visits, phone calls, court dates, and “seemingly endless paperwork,” plus the shock that the system does not have the sufficient support they need, forty to sixty percent of foster families leave the system within a year.  Without foster families in the system, some children will grow to adulthood and be left to fend for themselves with little to no influence of family structure and minimum skills for employment without any support system to ever fall back upon.  This could begin a cycle of uneducated youth released into the world to create families that are more probable to end up in the foster system due to the lack of care, funds, structure and etc. the first time through.

 

Because foster children are separated from their biological families, and often times separated from their siblings, after several months there is detachment issues these children acquire.  The longer they are away from their biological families, the harder it is for foster children to rebuild any sort of relationship, whether with their families, or later in life.  Because of this, foster children can lash out in different types of behavioral problems.  According to the DHS Medication Management Work Group, three times as many foster children, as opposed to other children, end up on psychotropic drugs in low-income families.  This can make foster children even more destabilized due to the treatment of their stress symptom rather than the root of that stress.

 

In nearly every state the amount of money needed for foster care far outweighs the government’s reimbursement rate due to the economic crisis our country is in today.  Not only is there an issue with foster children needing better mental health facilities, treatment programs and etc, but the issue worsens because the foster care system often cuts the budget in three major areas: provider reimbursements, frontline caseworkers and mental health.  This being said, in the case of these budget cuts, there would be less training for group home staff and parental training.  With fewer caseworkers there would be the probability of foster children being in more hazardous situations and an increased risk of trauma to those children. According to CHOP, children are often placed in foster care by availability rather than a good match for foster children and their long-term needs.  Some child protective agencies are requested to send children to government recruited homes rather than professional agencies to save on money.  Unfortunately these homes are not necessarily held to a set standard to validate said homes are the best place for the individual needs of those children.  Further, with the already unstable environments of some foster children, plus the budget cuts of mental health programs such as help and crisis lines, an increase in foster children’ suicides, pregnancy and drug and alcohol abuse may follow.

 

In nearly every state the amount of money needed for foster care far outweighs the government’s reimbursement rate due to the economic crisis our country is in today.  According to NPR radio in March of 2010, over 1,000 children die of abuse and neglect every year; and to further chill our society, states with big deficits are cutting child abuse prevention programs when those programs are what various communities need to cut down on the ever growing death, neglect and abuse rates (some due to the recession to begin with).  And although researcher Rob Green, on behalf of the Annie E. Casey Foundation, states that the recession may not be a conclusive reason for the rise in child abuse and neglect.  The findings in November of 2010 by the researchers from the Children’s Hospital of Philadelphia conclude that the economic downturn often hits the most vulnerable children and families the hardest.  It takes years of post recession for families to come back to the pre recession income levels.  Lower income families obviously take even longer to bounce back.  CHOP also explains that public programs play an incredibly important role in the keeping the families influenced by the recession in a less stressed environment, blocking more trauma for the usually already traumatized children and families involved in foster care.  In short, the most vulnerable foster children, foster families and programs supporting them would get the short end of the stick for years to come.

About the Author

As a researcher, Karen Jean Matsko Hood places her focus on child abuse and neglect and drug abuse.  She also researches to find possible solutions to these growing social problems. Hood has incorporated the studies of findings of research and drug abuse in families in her writings.  Hood’s research topics include such diverse topics as education, attachment disorder, attachment disorder therapy and treatment, the foster care system, human development, parenting, adoption, health, and historical topics.  Hood uses her B.S. Degree in Natural Science along with her research training in her Ph.D. program to conduct research on various plants and animal topics including equine, canine, and botanical research.

 

Hood resides in Greenacres, Washington, along with her husband, sixteen multi-racial and special needs children and foster children.  Her hobbies include cooking, baking, collecting various collectibles and antiques, photography, indoor and outdoor gardening, and the cultivation of unusual flowering plants and orchids.  She enjoys raising several specialty breeds of animals including Icelandic horses, bichon frises, cockapoos, Icelandic sheepdogs, and a few rescue cats.  Hood also enjoys bird-watching and finds all aspects of nature precious.  She demonstrates a passionate appreciation of the environment and a respect for all life.

 

For more information, you can contact the author at her office below:

 

Karen Jean Matsko Hood

507 N. Sullivan Rd. Suite LL-7

Spokane Valley, WA 99037 USA

Phone: (509) 924-3550 Fax: (509) 922-9949

karensblog.net

karenjeanmatskohood.com

A Helpful Guide to International Adoption

Tuesday, June 14, 2011 @ 05:06 PM
posted by Becca

It is often a difficult, emotional and confusing journey through the process of international adoption.  Once you have jumped through one hoop, there seems to always be another waiting for you.  And although the hoops are necessary, it is comforting to have information of which to refer.

Some frequently asked questions encompass the differences in the types of adoptions.  International adoption laws differ from country to country.  For a child to be eligible for an international adoption program, he/she must qualify under the laws of their country of origin.  You must comply with U.S. federal laws and the laws of your home state to be even considered to adopt.  U.S. Federal law does not prohibit Americans to adopt regardless of age, sex, race, color, national origin, religion, or income; various international agencies however, do often restrict those who have developmental or physical disabilities, single parents, or even those with a lower income.  For children abroad to come to the United States, you must determine if they are eligible to immigrate under the U.S. Immigration and Nationality Act.

Types of adoption processes differ as well.  If you travel abroad and at one of the family owned and run facilities you feel a deep connection to one of the children and you want to bring this into your home and ultimately, your family, this type of international adoption is independent and usually places all of the weight of the adoption process on your shoulders.  Depending on the kind of adoption you chose, the more or less likely you will encounter ethics and high standards in the adoption process.  Further, depending on the kind of adoption you chose, the more or less likely you are to be exposed to better costs, children’s health and facilitator competence.

Building from various laws to types of adoption, the actual process of adopting your child can again be, a confusing process on your journey in expanding your family.  There are more players in the adoption process than you may expect.  Your family and the parent(s) of the child, professional agencies, attorneys, adoption specialists, and licensing specialists are some of the players you need to be aware of.  Nationally or internationally, the business and personal ethics of each player spreads across the board.

The application process is essential for the adoption to be successful, and  regardless of the type of adoption you chose, one thing remains the same: the placement home study.  A home study is basically a series of appointments with an adoption professional.  After you find an agency within the United States to work with your international adoption, a local caseworker is assigned to your individual case.  Usually there is a minimum of four visits (depending on the state and/or country) between you and your assigned caseworker.

Out of all the decisions, applications, visits, and international laws and so on, the most agonizing part of the adoption process is usually the waiting game.  It can take between months and years or more for a family to receive a referral on a child.  After approval, it takes time for you and your future child to be matched.  Time is dependant upon the race, origin, other county’s laws, U.S. immigration laws, developmental disabilities, age, and etc.  This process has been compared to a biological family’s pregnancy period.  Each time a child is matched, it is an emotional “pregnancy test” for those waiting.  Once approved, its been described as a metaphorical “labor.’  If the child match falls through, the description is an even more emotional “miscarriage.”    Even with the pressures of your emotional roller coaster, your are expected to keep up with the expectations your state, country and country of your potential child.  f you do not receive your referral or your matched child within a year, the previously mentioned placement home study must be renewed every twelve months.

After the waiting and the arrival of your newest family member, there are obligations you are responsible for.  A minimum of three more visits (depending on the sate and/or country) are required. Nutrition, childhood development, emotional issues, discussing the adoption and education are only a few of the subjects you will encounter.  For international adoption, more pressing matters include culture shock and communication difficulties.

There are many hoops to jump through in the adoption process.  Many of those hoops will most likely be wrought with confusion if you do not have the proper resources to help on your journey to adopt a child.  Thus, there is a need for a guide to be written, not only to fill the literary gap in detailed adoption information, but also to educate society on the importance of international adoption as well as the importance of the legitimate people who work to make life a little easier for those attempting to understand the adoption process.

About the Author

Karen Hood was born and raised in Great Falls, Montana.  As an undergraduate, she attended the College of St. Benedict in St. Joseph, Minnesota, and St. John’s University in Collegeville, Minnesota.  She attended the University of Great Falls in Great Falls, Montana.  Hood received a B.S. Degree in Natural Science from the College of St. Benedict and minored in both Psychology and Secondary Education.  Upon her graduation, Hood and her husband taught science and math on the island of St. Croix in the U.S. Virgin Islands.  Hood has completed postgraduate classes at the University of Iowa in Iowa City, Iowa.  In May 2001, she completed her Master’s Degree in Pastoral Ministry at Gonzaga University in Spokane, Washington.  She has taken postgraduate classes at Lewis and Clark College on the North Idaho college campus in Coeur d’Alene, Idaho, and Taylor University in Fort Wayne, Indiana.  Hood is working on research projects to complete her Ph.D. in Leadership Studies at Gonzaga University in Spokane, Washington.

Karen Hood is also an avid child advocate.  She works with children as a foster parent in the State of Washington as well as a Court Appointed Special Advocate (CASA) volunteer in the juvenile court system in Spokane County.  Hood and her husband have a strong passion to fight for the plight of abused and neglected children and the rights of all children on a local, national, and international level.  Hood is also Guardian Ad Litem (GAL) and a CASA volunteer for abused and neglected children in the juvenile court system.  Hood is an advocate of literacy for children and has written many articles and books on this subject.  She also has written many articles on the rights of children and is currently working on books about the plight of children.

For more information, you can contact the author at her office below:

Karen Jean Matsko Hood

507 N. Sullivan Rd. Suite LL-7

Spokane Valley, WA 99037 USA

Phone: (509) 924-3550 Fax: (509) 922-9949

karensblog.net

karenjeanmatskohood.com

Attachment Disorder and Reactive Attachment Disorder in Spokane Valley

Tuesday, June 14, 2011 @ 04:06 PM
posted by Becca

According to the U.S. Census Bureau, a child is borne every 4.2 seconds.   Out of the nearly four million births in the United States each year, 1.25 million children are abused.  Of those, four children die daily from abuse and neglect.  Sixty one percent of those children are victims of educational, physical and emotional neglect.   Forty four percent are victims of physical, sexual and emotional abuse.  The numbers alone are alarming.  And further still, those who do physically survive their abuse and neglect suffer emotionally and mentally from childhood, through adolescence and even into adulthood.

Anxiety, depression, behavioral disorders; these diagnoses are only a few of the words used to try to explain the effects of cruelty exhibited in mistreated children.  And although there are many mental illnesses that are treated and kept under control with medicine and/or therapy, some illnesses are more severe than others.  Attachment Disorder and Reactive Attachment Disorder require some of the most aggressive treatments, and although with years of hard work from doctors, parents, and of course, children, there is no cure.  Thus, when a child with these diagnoses are thrown into the system, there can be both great healing and success or, in an unfortunate reality, they are only further damaged by the instability of multiple foster homes and care givers.  One would think that those responsible for the well –being of abused and neglected children would take every precaution to not aggravate their already unstable mental conditions.

What reason, then, could the court system have for allowing a child diagnosed with Attachment Disorder and Reactive Attachment Disorder to continually move from home to home?  Considering these two disorders are both incurable, the idea of bouncing unstable children from foster home to foster home is absurd.  According to research from a myriad of therapists including the Mayo clinic, children suffering from attachment disorder view the world very differently than others; usually, these children view those around them as unpredictable and unavailable.  Because their original parent was unavailable, abusive, and rejecting, they feel that all care providers are.  Further, according to The Family Attachment and Counseling Center, one of the best therapies available to these children is a long and nurturing relationship with a trusting care provider.  It then, goes without saying that moving children with Attachment and Reactive Attachment Disorder multiple times only further damages their psyche.

So what would happen to a child who is continuously moved, and in their mind only further rejected from another parent figure(s)?  According to the Mayo Clinic,

“…there[s] little research on signs and symptoms of reactive attachment disorder beyond early childhood. It may lead to controlling, aggressive or delinquent behaviors, trouble relating to peers, and other problems. While treatment can help children and adults cope with reactive Attachment Disorder, the changes that occur during early childhood are permanent and the disorder is a lifelong challenge.”

And the changes these children suffer are immense.  The complications they experience include delayed learning, poor self-esteem, delinquent or antisocial behavior, relationship problems, temper or anger problems, depression, anxiety, physical growth, severe eating problems and malnutrition, academic problems, drug and alcohol addiction, inappropriate sexual behavior, and unemployment or frequent job changes.

The fact is, those children diagnosed with these issues can live a normal life with the help of one stable environment, a constant parental figure and therapy both parent and child actively attend and practice.  Up to ninety-two percent of families who actively work through therapy show significant improvement.

About the Author

Karen Jean Matsko Hood is not only a well rounded and educated person, but a role model for those around her.  She is not only an adoptive and foster mother of sixteen children, but is also a teacher, writer, researcher, poet, and friend to both humanity and the environment.  Through her book readers from all walks of life will be touched and even inspired by the works Ms. Hood has chosen as her life’s path.  And as Ms. Hood invites you into her life and introduces you into her world, you will see how she is truly a legitimate source in the world of children’s rights, environmental preservation and motherhood.

For more information, you can contact the author at her office below:

Karen Jean Matsko Hood

507 N. Sullivan Rd. Suite LL-7

Spokane Valley, WA 99037 USA

Phone: (509) 924-3550 Fax: (509) 922-9949

karensblog.net

karenjeanmatskohood.com